Soha’s Star: Living With A Rare Disease

https://ourgrandfatherstory.com/video/sohas-star-living-with-a-rare-disease/

Imagine being told that you have a rare disease and there is no cure for it. The life-time of medication needed for your survival will cause an enormous financial burden. This is the reality for up to 3,000 people in Singapore.

Inspired by true events, this is one story of a family who received help that was life-saving.